Website for Marianne Sciucco, author of contemporary and YA fiction. I love to write. Shackled by RSIs. Published five stories anyway. Still writing. Admin at AlzAuthors, dedicated to Alzheimer's awareness. Amazon Affiliate. Eclectic reader and book promoter. Follow my adventures in publishing.
What if the person who knew you best and loved you most
forgot your face, and couldn't remember your name?
A nursing facility is everyone's
solution for what to do about Sara, but
her husband, Jack, can't bear to live without her. He is committed to
saving his marriage, his wife, and their life together from the devastation of
Alzheimer’s disease. He and Sara retired years ago to the house of their
dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas.
Jack has made an impossible promise: He and Sara will stay together in their
beautiful home no matter what the disease brings. However, after nine years of
selfless caregiving, complicated by her progressing Alzheimer’s and his own
failing heart, he finally admits he can no longer care for her at home. With
reluctance, he arranges to admit her to an assisted living facility. But, on
the day of admission, Sara is having one of her few good days, and he is unable
to follow through. Instead, he takes them on an impulsive journey to confront
their past and reclaim their future. In the end, he realizes that staying
together at any cost is what truly matters.
“This is a very moving story of
love and commitment beautifully told by this talented author.”
“A truly remarkable story.”
“I was immediately drawn into
reading about this family, leaving me with a heavy heart and much to think
"Not to be missed."
“So beautifully written, so
tender, so real.”
“This beautifully written and
poignant story captures you from page one and takes you on a sad, incredible,
and beautiful journey.”
“Reading this lovely book has
been a gift indeed.”
"Leaves the reader feeling
the power of a love story well-told." Story Circle Book Reviews
Sample Blue Hydrangeas
While night settled on Blue
Hydrangeas, Jack and Sara lay nestled on the couch, wrapped in a hand-knit
afghan, and clinging to each other as silent as stones.
The lights were out, a crackling
fire lit the room, and shadows danced on the walls. He cradled her in his arms
and stared into space, detached. She focused on the fire, unyielding in his
embrace, so far away. The Bach he had put on the CD player had long ended.
Outside, the first snowfall of winter blanketed Cape Cod.
He had done all he could to make
this evening the same as any other, but this godawful quiet made everything
seem so wrong. After forty-five years of marriage, it wouldn’t have surprised
him if they had run out of things to say, but not a day ended without some new
insight or tidbit of information passing between them. They shared
everything—their deepest fears, their most private thoughts. Tonight, there was
nothing, just this palpable silence, as they ruminated separately on their
visit to Dr. Fallon and the horrifying news he had given them.
Jack pondered the same
troublesome thoughts over and over, making no progress in absorbing the
doctor’s diagnosis. He knew enough about Alzheimer’s to fill him with fear, a
fear he had not experienced since his days as a medic in World War II. Back
then he had lived in anticipation of the next strike, the next slew of injured
and casualties. He could not sleep. He could not eat. Uncertainty consumed
every moment. Sara’s Alzheimer’s filled him with the same fear and anxiety. He
did not know what to expect, or when, or how bad it would be.
Some situations defy words, and
there were no words, no phony reassurances, to make this right. If there were,
he could not pretend to know them.
The room grew dark as the fire
burned low. The logs he had stoked an hour before were turning to ash. Neither
of them had the drive or the energy to get up and throw on another log.
At last, she broke through the
mournful silence. “I’m going to lose everything,” she said, her voice a hoary
whisper, a voice he had never heard before.
“Don’t say that,” he started, but
“Whatever happens,” she said,
“stay with me. I can’t bear to suffer through this without you.” A single tear
rolled down her cheek.
“Sh,” Jack whispered. He brushed
away the tear, and made a promise only prayer would help him keep. “Nothing like
that is going to happen. I’ll never leave you. We’re staying right here.” He
pulled the afghan tighter around them, sealing out the chill that slowly
descended on the room as the fire waned.
They sat in silence for a long
time, long enough for the fire to go out, and then he helped her off the couch
and took her to bed.
Nine years later....
Jack closed his eyes in
frustration and counted to ten.
Sara had emerged from the bedroom
in an outfit made for raking autumn leaves. A knitted cap that had seen better
days sat lopsided over her uncombed hair. She wore one of his old sweaters,
frayed at the wrists and coming apart under one arm. She clomped through the
house in a heavy pair of work boots. Where did she find these ridiculous
garments? He thought he’d sent that sweater to the Goodwill long ago.
He glanced at the clock and
sighed with exasperation. They had errands to run: the pharmacy, the post
office, the market. “Come on, Sara. I can’t take you out dressed like that,” he
“What’s wrong with it? This
sweater will keep me warm, and these boots are good for walking.”
“It’s summer, that’s what’s wrong
with it. Today’s a scorcher. It’s eighty degrees and only half-past nine. Put
on a pair of shorts and a blouse and let’s go.” He reached for her cap. “And
get rid of this.”
She blocked his arm, grabbed the
other, and gave him a nasty pinch. “I can’t go anywhere without my cap,” she
cried, darting away.
Jack yelped in pain. Clutching
his aching forearm, he chased after her through the dining room, the kitchen,
the living room, and back again, before facing off at the single step leading
into the family room. Again, he reached for the cap. She lunged forward to
deliver another pinch and they lost their balance, falling over the step. Sara
landed on her right hip with a terrific bang. Jack landed on top of her.
That’s it, he thought, afraid
she’d broken a leg, hip, or worse. He pulled himself upright, groaning as his
stiff joints protested. He tried to stand her, a tiny, wiry woman, but she felt
like dead weight and resisted his efforts, howling like a wounded dog. He bent
over her, and with his strong but gentle hands grasped her right leg and
cautiously checked its range of motion.
She clawed at him and screamed,
“Let go of me, you old fool, I’ve hurt my leg.”
He removed his hands and tried to
stand up but she pulled him back down on to the floor.
“I’ve hurt my leg,” she cried. “I
can’t get up.”
“I know,” he grunted, breathless
from his exertions. “I’m trying to help you.”
She wouldn’t let him go, but he
needed to call for help. He struggled to pull himself free and wrenched his own
back, sending a violent spasm up from his lower spine to between his shoulders.
“Good God,” he cried, and she
He staggered to the phone and
called the paramedics. Then he dropped down on the floor beside her and spoke
to her with soothing words.
“It’s all right,” he said.
“Everything’s going to be all right.” He stroked her face, her hair, and
repeated this mantra until she settled down. When she had quieted, he reached
into his pocket, pulled out a tiny vial of medicine, and placed a little pill
under his tongue to quell the ache in his chest.
Jack felt wiped out, unable to go
on. Their day-to-day battle with Sara’s dementia exhausted him. It was a
relentless battle of small hopeful gains alternating with frequent devastating
losses. Just that morning, she’d awakened at three and slipped out of bed
without making a sound. The clatter of pots and pans in the dead of night
dragged him out of a deep sleep, and he stumbled into the kitchen to find her
hard at work brewing pots of coffee and baking blueberry muffins.
Years ago, it would not have been
unusual. They had operated their home, Blue Hydrangeas, as a bed and breakfast
for almost a decade, but Sara had forgotten they’d closed for business a few
Jack played along with her
frequent lapses in memory to maintain peace in their home. It was demanding,
discouraging work, and at the end of some days he felt ready to give up. But,
when morning came things always seemed better and he gave each new day another
go. The days rolled into weeks, months, and then years, and here they were,
together at home, just the two of them with Sara’s Alzheimer’s.
He knew it was important to keep
her in the present, but in the middle of the night he didn’t have the energy.
She ignored his desperate pleas to go back to bed, insisting she had work to
do. Wary of starting an argument, he poured himself a cup of strong coffee and
waited for the muffins to bake. When no guests came down for breakfast, her
disappointment broke his heart.
Jack heard the ambulance pull
into the driveway and extricated himself from Sara’s grasp.
“Where are you going?” she asked.
“Don’t leave me here lying on the floor.”
“Hold on, Sara,” he said. “Help
is on the way.”
He limped to the door and greeted
“I’m sorry to call you out like
this,” he said, “but my wife has fallen again and I can’t lift her.”
“No problem, Mr. Harmon,” said
the first paramedic, a young man named Robert whom Jack recognized from a
previous emergency call to the house. “We’ll take care of her.”
Jack led them to the family room
where Sara still lay sprawled on the step. She looked at the men warily and
asked, “Who are you?”
“Hello, Sara,” Robert said. “I
heard you had a fall.”
“I can’t get up,” she said. “It’s
all his fault.” She pointed at Jack.
“Now, Sara,” Jack said, “it was
“Accident, schmaccident,” she
said. “It’s all your fault.”
“Can you tell me what happened,
Mr. Harmon?” Robert asked as he knelt beside Sara.
“It was a silly thing,” Jack
explained. “A silly argument over her cap.”
“He won’t let me wear my cap,”
Sara said. “Ouch!” she cried as Robert and his partner Jeremy tried to
“It’s okay, Sara,” said Robert.
“I just need to examine you and make sure nothing’s broken.”
“Get your hands off me!” she
shrieked. “You’re hurting me.” She slapped at their hands “Let me go or I’m
calling the police.”
“Now, there’s no need for that,”
Jeremy said. “We’re done here. We’re taking you to the hospital to get you
“The hospital? I don’t want to go
to the hospital.”
“You need to go, Sara,” Jack
said. “You may have broken your leg.”
“Probably not, Mr. Harmon,” said
Robert as he and Jeremy rose, “but we need to make sure. I’m going to take your
blood pressure, Sara, while my buddy here goes out to get the stretcher. Is
Sara watched him pull out a
stethoscope and blood pressure cuff. “Don’t break my arm,” she said.
“Of course not,” said Robert. He
did a quick assessment of her vitals. “Blood pressure’s a little low,” he told
Jack, “but pulse is steady.”
“Thank God,” said Jack. He
hovered over Sara. “Is there much pain?” he asked her.
“Of course there’s pain,” she
said. "What a silly question.”
Jeremy arrived with the stretcher
and the paramedics lifted Sara to place her on it.
“Go easy, go easy,” she said,
“Please don’t hurt her,” Jack
“We’re trying not to,” said
Jeremy, “but she may be uncomfortable while we move her.”
“Oh,” Sara cried, “stop! Stop it
I say, you’re killing me.” She swatted at them, making it difficult to complete
the transfer without jostling her. “Put me down,” she ordered.
“We’re all done,” said Robert as
he covered her with a sheet and strapped her in. They began rolling the
stretcher toward the front door. Jack followed, limping and massaging his lower
“Are you okay, Mr. Harmon?” asked
Robert. “You look like you’re in pain.”
“I’m all right,” Jack said. “Just
a twinge in my back.”
“He fell, too,” said Sara, “right
on top of me.”
“Whoa, wait a minute,” said
Robert, stopping at the door. “Let me check you out.”
Jack shook his head. “I’m fine.
I’m more worried about Sara. Let’s get her to the hospital. I’ll get checked
out once I know she’s okay.”
They exited the house and
proceeded to the ambulance. Once Sara was secured in the back with an attentive
Robert at her side, Jack climbed into the passenger seat up front with Jeremy
who whisked them away to the hospital.
A few hours later, the doctor
released Jack from the ER. X-rays of his back had turned out fine. An
electrocardiogram revealed no new changes. His blood pressure was way up, but
after a dose of intravenous medication it returned to a safe level. The ER
doctor told him to follow-up with his primary care physician in the morning,
prescribed muscle relaxants for his back pain, and advised him to take it easy.
Sara was not so lucky. Her right
hip and leg were intact, but she had suffered severe bruising and the leg was
swollen and tender. It was difficult for her to bear weight. The doctor also
discovered she had a serious urinary tract infection and was dehydrated. He
admitted her to the hospital for a few days of intravenous antibiotics and
fluids. In the morning, she’d start physical therapy.
Jack went along with the nurses
and orderlies to help settle Sara in her room. When they left, he moved a chair
over to the side of the bed, and waited while she pulled up the covers and
shifted around trying to get comfortable. After she stopped fidgeting, he held
a cup of cranberry juice to her parched lips and offered her the straw.
“What are we doing now?” she
asked, her voice cranky with exhaustion.
“We’re going to have lunch,” he
said. It was well after noon.
“Here?” she asked, before taking
a long sip of juice.
“What is this place?”
“It’s the hospital, Sara. We’ve
been here before.” Her long snowy hair matched the pure white of the linens. He
finger-combed the tangled mess, trying to make her look more like herself. At
home, he brushed it every night, one hundred strokes, until it shone like silk.
She nodded and sucked down the
last of the juice. Jack placed the empty cup on the table.
Are we staying here all day?”
“You’re staying here. I’m going
“I don’t want to stay here. I
want to go home with you.”
Jack squeezed her hand. “Maybe
“Why do I have to stay?” Her eyes
turned dark, the way they did when she was gearing up for a fight.
“Because Dr. Fallon wants you to
stay,” he said in his don’t-argue-with-me tone. “You need medicine, Sara.”
“I have medicine at home.”
“Not this kind of medicine.” He
pointed to the intravenous tubing and bags of fluids and antibiotics hanging on
the tall metal pole next to her bed.
“I don’t see what all the fuss is
about,” she said, plucking at the sheets. “I feel fine.”
A cheerful nursing assistant
entered the room, providing a welcome distraction. “Hello, Mrs. Harmon,” she
said. “Back with us again?” Jack recognized Verlaine, his favorite nursing
assistant on the hospital’s staff. She carried a food tray and placed it on the
overbed table within Sara’s reach.
“What have we here?” Verlaine
asked, opening the containers of food. “Chicken, white rice, and steamed carrots.”
She cut the chicken and vegetables into bite-sized pieces. “And you’ve got milk
and a bowl of chocolate pudding.” She spread a napkin over Sara’s chest and
boosted the head of the bed up so she could reach her food. “Anything else I
can get you?” she asked with a beautiful smile.
“No, thanks,” Jack said. Sara had
started eating, seeming to have forgotten he and Verlaine were still in the
“Take care, Mr. Harmon,” Verlaine
called as she left them alone.
Jack watched Sara eat. Dr. Fallon
had made it clear that a proper diet was important to maintain Sara’s
stability, and Jack took meal times seriously. She had a good appetite,
although sometimes he had to prod her into eating anything at all. She often left
meals unfinished and sometimes hid unwanted food behind the couch or at the
back of a kitchen cabinet where it turned bad before Jack found it. However,
for this meal Sara was settled in and eating happily. His own stomach rumbled,
reminding him he had not eaten since the blueberry muffins earlier that
morning. He’d also missed his noon medications.
“Honey, I’m going down to the
cafeteria to get some lunch.”
Sara was concentrating on her
pudding and did not look up.
At the elevator, her case
manager, Allison, approached him. Her job was to assist patients and their
families with arranging the aftercare that followed a hospitalization.
“Mr. Harmon, I’m glad I ran into
you,” she said, all business. We need to talk.” She was a strapping woman,
mid-forties, with a kind face and a no-nonsense attitude.
“It’s a beautiful day, Allison.
You should sneak out and take a walk,” Jack said, sidestepping her. “I won’t
tell,” he winked. The elevator doors opened and he moved forward.
Allison refused to let him get
away. She took him by the arm and led him into her office. “Has anything
changed at home since your wife’s hospital visit last month?” she asked.
“Oh, no,” he explained, smiling.
“My grandson Derek is still staying with us.”
Allison said, “Your grandson
“Well, yes, of course,” Jack
said, “but he helps out when he’s home. I also have Mrs. Wright, my
housekeeper, coming in every morning, and Margie, Sara’s companion, is
available whenever I need her. Then there’s our good friend, Rose Fantagucci,
just down the road, and you know my son and his wife are a short ride away up
in Boston. I’ve got it all covered.”
The case manager frowned. “That’s
not enough, Mr. Harmon. Your wife needs dependable twenty-four hour care.”
“But I’m there twenty-four hours.
I never leave her alone.”
Allison sighed. “Full-time caregiving is a
tough job. We’ve talked about this before. It’s time, Mr. Harmon. This is too
much for you. Sara should be in a place where her needs are met twenty-four
seven. One person can’t possibly fulfill that responsibility.”
During Sara’s many
hospitalizations, the case managers and nurses had questioned Jack’s ability to
care for his wife. Today, it was Allison’s turn to convince him that an
alternative living arrangement was in Sara’s best interest.
“You mean a nursing home,” Jack
said, gagging on the words. The thought sickened him. So many of those
afflicted with Alzheimer’s finished their days in nursing homes, and he was
determined to keep Sara with him for as long as possible. Forever. He’d never
consent to an arrangement that would take her from Blue Hydrangeas.
“Not a nursing home, Mr. Harmon,”
Allison explained, “but an assisted living facility, where Sara will receive
around-the-clock supervision by people trained to meet her special needs. Think
of it as a bridge between living at home and living in a nursing home.”
"You’re not fooling me,” he
said. “It’s the same thing. Either way, we’ll be separated, and I promised Sara
we’d stay together in our home no matter what.”
“You might consider assisted
living for yourself as well, Mr. Harmon, given your heart condition—”
Jack wouldn’t let her finish.
“This is nuts,” he said. “I’m perfectly capable of caring for Sara on my own. I
love my wife. Don’t worry about us, Allison. We’ll be all right.” He patted the
case manager’s arm.
"Mr. Harmon, this isn’t
about love,” she said. “It’s about your wife’s care and safety. Love is not
“You’re very kind, Allison, and I
appreciate your concern, but I’ll let you know when I’ve had enough. Right now,
I need to get some lunch.” He walked out of her office.
After dining on the cafeteria’s
daily special he returned to his wife, now sleeping peacefully, her face devoid
of any stress. Jack stared at her for a long while, seeing vestiges of a young
Sara, remembering the first time he had seen her fifty-seven years ago. Sara
was nineteen, a blue-eyed beauty with rich auburn hair and tiny freckles
splashed across her tiny nose. The face he saw now was older and well seasoned,
but at seventy-six she was still a beauty.
The auburn hair had turned snow
white and covered her shoulders like a silken shawl. Her blue eyes still
sparkled like jewels, but now tiny lines framed them. He smiled, thinking of
how she lamented those wrinkles, blaming herself, a redhead living her life in
the sun. She had taken care, but her love for the outdoors, the ocean, and her
gardens had gotten the better of her. Jack thought the wrinkles added
character, a testament to a life well lived.
Her hands, though, revealed the
most about her. Once as soft as rose petals, they had become calloused and worn
by her life’s work. As a commercial artist, she had dipped them into oil paint
and turpentine for decades. And, when her hands were not commanding a
paintbrush they had dug deep into the earth, creating a spectacular garden that
reaped awards from gardening groups throughout New England.
Jack loved those hands, and held
both of them in his own. Over the years, he had lavished her with exquisite
jewelry, but these days she wore one simple gold band on her wedding finger,
delicately inscribed with the words: “Always, my love. Jack.” He stroked the
ring, gazing at her with a mixture of love and grief. The last nine years had
been tough and promised to get tougher. He sensed change, and loss, and death
ahead and it filled him with fear deeper than he had ever known. The
realization that one of them would die, would leave the other, paralyzed him.
How could he live without her? What would she do without him?
“Oh, Sara,” he whispered, a catch
in his throat. Tears formed in his eyes and he brushed them away. He did not
know whom he pitied more: Sara or himself.
He pulled away from her bedside
and went home to call their son.